Everyone says that caring for the caregiver is just as important as caring for the one with special, usually medical, needs. But you never really know how true that statement is… until you experience it, as I did this past weekend.
Some years back, my maternal grandma was diagnosed with senile dementia. At first, we just had to cope with the same questions being repeated countless times within an hour. Then, as the disease started to rob her of her mental faculties, she would get easily agitated when we couldn't quite comprehend what she was trying to say. Needless to say, it took a great toll on my mum, her primary caregiver.
It meant that Mum rarely went on a holiday because she knew grandma's drug allergies and kept track of all her appointments (she was/is seeing an opthamologist, psychiatrist/geriatric doc and orthopaedist). And on the rare occasion that she did go away, it would be with Dad on a company trip, and she'd be gone for no more than a long weekend.
Finally, after yet another hospital stay last year (Grandma fell down at home because she refused to use a walking aid), the decision was made to place her in a home where she would be taken care of. (I refrain from using the phrase 'well taken care of', because we all know it's not true.)
At first, she visited every day… then as Grandma's condition continued to deteriorate, she cut back to two visits a week. After all, it didn't matter anymore because Grandma couldn't keep track of time. This also meant that she could go away for slightly longer periods of time, so she visited Japan last year, and we all went to Hong Kong earlier this year.
This past weekend, Mum and Dad went to Malacca, so it was up to my brother and I to take care of Grandma, who'd been admitted to hospital the previous week.
I was apprehensive, because I knew that Mum was the only one who could really handle her. Coupled with my (occasional) impatience with her repeated questions, I honestly wasn't sure how we'd all survive the weekend without bloodshed.
But all things considered, I think we handled it really well.
Perhaps Grandma knew that she couldn't bully us the way she bullies Mum. And that grandchildren in general these days aren't very good with the whole filial piety thing. So the fact that we turned up at every block of visiting hours, chatted with her, answered all her questions about when he was going to give her a great-grandchild, and when I'd be getting married (repeatedly)… meant a lot to her. I know, because she thanked us profusely on one of the days. It was an absolutely random act that took us both by surprise.
And we made it through the weekend without so much as a hint of an argument. My brother and I, that is. Which, if you know us both well enough, is quite rare.
So, Mum returned from the trip last night, happy and well-rested, and I know our stellar report of the weekend, peppered with anecdotes of Grandma's antics, added to her happiness, too… 'cos for once it meant that she didn't have to get on our case about how I should lighten up and ignore my brother's nonsense (which I do for most part… until he starts making disparaging remarks about my life).
In short, my point is that caregivers need a break every now and then to keep sane. I know my mum's belief in God gets her through many a tough time with Grandma, but that's just not enough. She needs to spend time recharging on a regular basis by being physically away from Grandma.
It's not easy (Mum can be quite a control freak), but she has to learn to let go bit by bit. Because one day Grandma won't be around anymore, and when that happens, the loss may hit her even harder than it should, simply because she wouldn't know what to do with all the extra time and energy.
If you have a caregiver in your family, make sure you take good care of them. Don't be afraid to step up to the 'challenge' of taking over the caregiver position every now and then. Trust me, it really helps, because caregiving, for most part, is a thankless job.